Communication Resilience among Chronic Illness Patients: A Phenomenological Study of Hepatitis B Survivors Facing Social Stigma

Authors

  • Aphrodid Aisyah Trunojoyo University image/svg+xml Author
  • Adethya Napitupulu Trunojoyo University image/svg+xml Author
  • Rafi Dwiko Alif Prananda Universitas Trunodjoyo Madura, Jawa Timur, Indonesia , Trunojoyo University image/svg+xml Author

DOI:

https://doi.org/10.56480/jln.v6i2.78

Keywords:

Communication Resilience, Social Stigma, Phenomenology, Chronic Illness, Hepatitis B

Abstract

This study aims to explore the communication resilience demonstrated by Hepatitis B survivors after overcoming the critical stages of their illness, particularly when dealing with social stigma. Chronic diseases not only affect physical health but also generate psychological and social challenges due to prejudice and limited public understanding. Employing a qualitative phenomenological approach, this research investigates the communication experiences of two female Hepatitis B survivors who have encountered stigmatizing attitudes within their social environment. Buzzanell’s (2010) Communication Resilience Theory is used as the analytical framework to examine how individuals reconstruct their identities, maintain social relationships, and create new meanings in response to adversity. The findings reveal that both participants experienced substantial communication challenges, including social exclusion, negative remarks, and misunderstandings arising from inadequate health literacy among community members. Despite these difficulties, they exhibited communication resilience through several strategies, such as controlling the disclosure of personal information, relying on family support, and developing more constructive self-narratives. These findings suggest that resilience extends beyond mere survival; it represents an active communicative process through which survivors adapt, recover, and continue to build meaningful lives despite experiencing social stigma.

References

Afifi, T. D., Harrison, K., Merrill, A., & Nimah, S. (2020). The Resilience of Families Facing Chronic Health Conditions: Testing the Theoretical Framework of Communication Resilience. Journal of Family Communication, 20(3), 211-228. https://doi.org/10.1080/15267431.2020.1773421

Buzzanell, P. M. (2010). Resilience: Talking, resisting, and imagining new normalcies into being. Journal of Communication, 60(1), 1–14. https://doi.org/10.1111/j.1460-2466.2009.01469.x

Chaudoir, S. R., Earnshaw, V. A., & Kalichman, S. (2013). Disclosing HIV Status: A Meta-Analysis of Communicative Strategies and Psychological Resilience among Stigmatized Populations. AIDS and Behavior, 17(5), 1610-1622. https://doi.org/10.1007/s10461-012-0382-x

Creswell, J. W. (2013). Qualitative inquiry and research design: Choosing among five approaches (3rd ed.). SAGE Publications.

Dorrance Hall, E. (2021). The Supportive Role of Family Communication Networks in Buffering Social Marginalization and Health-Related Stigma. Human Communication Research, 47(2), 145-168. https://doi.org/10.1093/hcr/hqaa012

Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Prentice-Hall.

Husserl, E. (1913). Ideas: General introduction to pure phenomenology. (W. R. Boyce Gibson, Trans.). George Allen & Unwin.

Kementerian Kesehatan RI. (2022). Profil kesehatan Indonesia 2022. Kemenkes RI.

Link, B. G., & Phelan, J. C. (2001). Conceptualizing stigma. Annual Review of Sociology, 27(1), 363–385. https://doi.org/10.1146/annurev.soc.27.1.363

Luthar, S. S., Cicchetti, D., & Becker, B. (2000). The construct of resilience: A critical evaluation and guidelines for future work. Child Development, 71(3), 543–562. https://doi.org/10.1111/1467-8624.00164

Moustakas, C. (1994). Phenomenological research methods. SAGE Publications.

Petronio, S. (2002). Boundaries of privacy: Dialectics of disclosure. State University of New York Press.

Sansom-Daly, U. M., & Wakefield, C. E. (2022). Communicative Alienation and Identity Preservation in Chronic Illness Narratives: Moving Beyond Overt Rejection. Health Communication, 37(8), 981-994. https://doi.org/10.1080/10410236.2021.1888340

Smith-Frigerio, S. (2020). Health Disparities and Cultural Myths: Analyzing the Communicative Stigma of Infectious Illnesses in Asian Contexts. International Journal of Communication, 14, 2341–2359.

Southwick, S. M., & Charney, D. S. (2012). Resilience: The science of mastering life's greatest challenges. Cambridge University Press.

Wallace, J., Richmond, J., Degeling, C., & Pitts, M. (2021). Intersecting Vulnerabilities: Maternal Stigma and the Lived Experience of Pregnant Women with Hepatitis B. BMC Public Health, 21(1), 412. https://doi.org/10.1186/s12889-021-10413-w

World Health Organization. (2023). Hepatitis B: Key facts. WHO. https://www.who.int/news-room/fact-sheets/detail/hepatitis-b

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Published

2026-06-10

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Section

Institutional Partners: Universitas Trunodjoyo Madura

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How to Cite

Communication Resilience among Chronic Illness Patients: A Phenomenological Study of Hepatitis B Survivors Facing Social Stigma. (2026). Literasi Nusantara, 6(2), 260-269. https://doi.org/10.56480/jln.v6i2.78

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